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February 2013

There's a charity at my school that focuses on different causes every year, and this year the cause is autism. They've raised upwards of $5,000 already, which would be fantastic if they weren't donating it to Autism Speaks. They've also been talking about "finding a cure" throughout the project. They just seem very uninformed and very misguided to me. However, I am allistic, and I don't know if it's my place to intervene. And, if it is, how am I to go about doing it?

I know this sort of thing can be difficult, but no matter what, it’s always best to be informed about the realities of any charity organization. Something that appears on the surface to be good may not be so when examined from another angle. No one should remain silent in cases like those. Especially when it’s so hard to get people to listen in the first place. Every voice is valuable when it comes to shutting down horrible organizations like Autism Speaks. 

If you want to intervene, you will face opposition and you may not succeed. But if you change even one mind, you’ve achieved something, which is very important to remember. Start by getting as well informed as you can about why Autism Speaks is so bad. This post is an excellent place to begin in that respect, and even lists alternate and preferable charities. Ask for permission to print out this information to pass around, or email links to the people involved in raising money at your school. 

A very important thing to remember: Autism Speaks feeds on the same fears that anti-vaxxers and alt-med gurus do. They target parents who were given no hope by the psychologists and psychiatrists involved in diagnosing their child, parents who have to fight with crappy systems that refuse to provide what their children actually need, and with an overall field that is still very uneducated and incompetent when it comes to understanding autism. 

This makes it much easier for them to paint autistics as a burden, as a problem that needs curing, when its society that needs curing. It’s society that makes things burdensome with its inflexibility, it’s lack of compassion, its strict adherence to “normalcy.” Find information and a charity, if you can, that works to combat those problems by changing society rather than changing us, is what I guess I’m getting at. 

Autism Speaks is big, loud, and well-funded and that gives it a huge advantage and allows it to manipulate situations to fit its needs. Even making small inroads against it is beyond valuable. 

Feb 27, 20139 notes
#autism #Autism Speaks #charity #charities #ask
Can you promote Queerability? It's a brand new blog for LGBTQ+ disabled people!
Feb 27, 20131 note
True story: a few years back, there was a contestant on America's Next Top Model who has AS. For about four months, friends and relatives came up to me and said "you remind me of that chick from Top Model". This was when I was 13 and hated myself and didn't want to be compared to some chick from Top Model.

I actually watched that season, and I did like Heather (the model in question).

But that sort of situation is always such a double-edged sword for us. It would be nice if allistics saw that and took from it that autistic people are people, we’re all different, we have different strengths and weaknesses, different goals and dreams. 

Instead the majority of them seem to have one of two reactions. Either they do what your friends and relatives did, because for some reason they have to compare autistic people to other autistics like Rain Man (who was based on an actual autistic) or Temple Grandin or Heather herself.

Or they’re all “She can do that, why can’t you?” 

It’s great when autistic people make inroads in careers that aren’t the acceptable, stereotyped ones, but that sort of reaction to it really bites. 

Feb 26, 20136 notes
#autism #actually autistic #actuallyautistic #asperger's syndrome primer #aspergers syndrome #America's Next Top Model #allistics
Now What Do I Do? Please, Please Help.

neuroatypically-speaking:

[TW: Ableism, bullying, self-harm]

Normally I find myself answering requests for advice, either here or on Autistic Hedgehog, but this time I’m the one at a loss for what to do. (Sorry it’s so long, but I really am desperate for some help.)

On Wednesday my brother- and sister-in-law came for a visit. We (them, me and my husband) went to the Tutankhamun exhibit—which honestly turned out to be a bit of a disappointment, all told. The structure of it encouraged people to gather in large flocks like sheep and not move an inch for long minutes at a time, meaning I was constantly surrounded by the crowd and didn’t ever feel truly comfortable stopping to examine the artifacts (which were sadly all replicas anyway). That, as you might imagine, left me pretty exhausted and worn around the edges. 

The trouble really started sometime later, on the bus on the way to the bookstore and while at the bookstore. Somehow we got on the subject of TV, and on Elementary and BBC’s Sherlock. My husband and I love Elementary, but they’d never seen it because some people told them it was horrible. Of course, they love Sherlock. I pointed out that we hadn’t seen it and explained the reasons why—actors and creators involved saying horrible ableist, sexist, and other bigoted things, the show itself having, by all reports, tons of other problematic elements. 

Suddenly my husband and I were having that conversation. The one where the other party, secure in their privilege, is spouting things like “Well I don’t see anything problematic with it” and “Why would I want to look for problems in something?” and “I don’t just dismiss something simply because it might have problems.” Y’all know what I mean, you’ve seen the same arguments about a thousand bazillion times here on tumblr and elsewhere. (And the hypocrisy didn’t help. It’s okay for them to dismiss a show because some people told them it was horrible, but me not wanting to watch a show I have very good reasons to believe would offend and possibly even trigger me is somehow unfair?)

They know I’m autistic, btw, and I tried to explain Cumberbatch’s comments on the matter of playing Sherlock as autistic and the issue that’s brought with it, which brought on a “what if he was just saying that to stir conversation?” thought experiment apologism from my brother-in-law.

So of course, my long years of “training” kicked in and I’m like “Hey, I got the book I wanted, let’s just go buy it and go to dinner.” I was punished so much for being bullied (no, that was not a typo) that my kneejerk reaction to shit like that is “Fuck, if I defend myself there’ll be trouble and it’ll be my fault.”   

Then we’re at the restaurant and I’m hoping we can just avoid anymore of this stuff, but the universe is never that accommodating for me. Which meant that my brother-in-law, while checking Facebook on his phone, found a “hilarious” joke he just had to share with us:

Being popular on the internet is like sitting at the cool table at a mental institution.

Oh yeah, so funny I forgot to laugh. I know I don’t need to explain to y’all why that’s so horrible, and that’s a relief, because It gets old real fast having to explain that shit to privileged people.

Thus followed the typical “arguments” including the ever-popular classic: “It wasn’t an insult, it was just a joke.” And the whole thing about how it didn’t have anything to do with me, it wasn’t personal. (It was very personal. Autistic Hedgehog is close to 500 followers. I just got told my success with that deserves to be automatically stigmatized.) Then he had the nerve to ask me how many times I’d been in a mental hospital and I—and I’m quite proud of this—looked him straight in the face and told him it was none of his business.

That seemed to quiet him down and I thought that might be the end of it. We ate dinner and afterwards, I took out my phone and began looking at Tumblr. My in-laws already know that being around people stresses me out and sometimes I need to spend a few quiet minutes to myself, which isn’t a personal thing, it’s just me. Being at a restaurant, I didn’t really have that option. I thought a little time with my phone would help me fix some of my frayed edges, so I could get through being overwhelmed by the whole day and everything that had happened and we could just move on with our evening without further incidence.

The problem with trying to smooth my frayed edges is that while I’m frayed, I can tune out the rest of the world, but as the pieces start coming back together, the world comes back to me. I started to notice my husband and brother-in-law having a pretty heated discussion in Danish and it didn’t take long for me to realize they were talking about me (despite the fact that I know maybe 5 words in Danish, I’m not oblivious). 

They did eventually switch to English at which point followed a barrage, mostly from my brother-in-law (with some support from my sister-in-law) about how terrible it was, that I was acting like he was such an asshole when he wasn’t. And what’s the problem with that joke anyway? Oh, it’s stigmatizes mental illness and developmental disabilities? Well, that’s not his problem. And why should they always have to walk on eggshells? Um excuse me, I was the one walking on eggshells, biting my tongue, swallowing how offended and hurt I was and trying just to move on. I was not the one who brought it up again. 

At one point my sister-in-law chimed in that she “has an autistic brother” (and no, miraculously enough I did not in fact go through the roof at that, though it was a near thing) and they always just treat him “normally” (nope, somehow managed to avoid going through the roof at that, too). And my brother-in-law in law says that they just talk around him like they would around anyone else because they don’t want to disable him. To which I said “But I am disabled” and I know autistics aren’t always good with tone, but the unspoken “and there’s nothing fucking wrong with that!” was pretty hard to miss. 

If I hadn’t been so overwhelmed and tattered, I might have had the wherewithal to point out that by treating him “normally” they’re teaching her brother to internalize hatred towards himself and people like him, but by that point I was losing it. They kept pressing me, barely giving me time to speak or gather my thoughts and anyone with eyeballs could see I was falling apart. Then my brother-in-law sent his enemy troops across the border to declare war.

“I don’t have a diagnosis that allows me to get away with things that other people consider rude.”

Supposedly he didn’t mean I was using my autism as an excuse, but so the fuck what. I’ve had people say things like that to me before. I’ve had it screamed at me, had it implied, had it said bluntly to my face, had people give me looks that expressed the sentiment with plenty of clarity. I’m actually usually pretty forgiving about people intentions, because of what happened to me in middle school, but this was too far across the line, intentions notwithstanding. I broke. I left the restaurant, I stood in the freezing cold waiting for my husband to join me, I cried my eyes out (which is a messy affair when you’re wearing five pounds of glittery eye makeup) and I just didn’t care anymore what people thought of my behavior. 

Some important points:

  1. Apparently the argument my husband and brother-in-law were having was because me spending a few quality moments with my phone was rude, but the “joke” my brother-in-law made came from Facebook, which he checked on his phone periodically throughout the day.
  2. My brother-in-law knows I don’t speak Danish, but proceeded to have a conversation about me, speaking in a language I don’t speak, while I was sitting right there. My husband has apologized for not turning the conversation over to English sooner, but hello, I was sitting right fucking there, if you have a problem with my behavior speak to me.
  3. Often when we go out together, my husband, sister-in-law and brother-in-law will start speaking in Danish (all my Danish relatives do this sometimes). It used to sting, being left out of the conversation like that, but I’ve learned to accept that my in-laws are Danish and sometimes they’re gonna be Danish. I thought they understood that I’m autistic and sometimes I’m gonna be autistic. Yet somehow them checking me out of the conversation is a-okay, but me checking out of the conversation for reasons of mental health is rude.

Being a white, cis, straight, able-bodied Danish person is about the most privileged position in the world. It really is, and they pretty much never have to face their privilege because of it. My husband and I have had some serious knock-down, drag-out fights over it (don’t get me started on the Julian Assange Incident) and the thing is, he’s learned. So maybe they can learn too. Maybe they can learn to understand why they were stepping all over me. My husband says they feel bad for hurting me but…

But they’re not the ones stuck in the cycle of “I’m so angry, I’m so hurt, this is all my fault because I didn’t keep my mouth shut. I’m so angry, I’m so hurt, this is all my fault because I didn’t keep my mouth shut.” (Shampoo, rinse, repeat.) They’re not the ones who wanted to go home and find the nearest sharp object. They’re not the ones who were pushed into a meltdown by people they thought they could trust. My family accuses me of never forgiving, but the fact is my family never dealt in forgiveness. My mom used to say “life is too short to stay angry” which was code for “let’s sweep this under the rug and never deal with it” so bad things happened over and over again until forgiveness wasn’t possible. 

I don’t want to get caught in that cycle again. I don’t want to cause trouble between my husband and his family. At the same time, I’m nowhere near ready for forgiveness. I want to stay in my ball with my quills out, because I feel so hurt and betrayed and it’s the only way I know to protect myself. I want to accept that it’s okay that I’m angry, but I’m caught in all those years of being taught that everything I do is wrong, that I’m abnormal, that I’m cold, that I’m unfeeling and unforgiving, that I’m monstrous, that standing up for myself is wrong. (And I feel like a hypocrite, because I tell people on AH never to let others convince them that standing up for themselves is wrong, but it’s so, so hard to get over all those years.) 

It’s making me irritable about small, silly things. It’s disrupting my focus and my sleep. Part of me knows my in-laws aren’t shitty people, they just did a shitty thing, and part of me is so, so angry, and I don’t know how to reconcile the two. It’s hard to trust after everything I’ve been through, but I don’t want to be so inflexible that I always shut people out and never give them a second chance, and I don’t…I don’t know what to do. I don’t know how to feel. I’m at such a loss and this time I’m the one that needs help. 

From my personal blog. I’m reblogging it here in the hopes that maybe some of my AH followers can help. 

Feb 15, 201319 notes
#autism #actually autistic #actuallyautistic #ableism #allistics #allistic privilege #privilege
I know that physical violence is wrong, but I’ve found that it’s the only way to get people to respect my boundaries. I feel terrible for enforcing personal space rules with threats of hitting people, but I don’t know what else to do. I need people to not touch me, and when I tell them “don’t touch me”, it just makes them do it more.
External image
 Anonymous

 

I’m going to say something here that might be a bit controversial, but I think it needs to be said.

It’s true that in most situations, avoiding violence is best. But we should never forget that the idea that violence is wrong is often used as a tool of oppressors to keep people oppressed. Think about it: People are perpetrating violence (and yes, it is violence) against you, yet you’re the one feeling guilty. Because so many of us live in a society so twisted that many types of violence against people are accepted and normalized, but standing up for oneself is demonized. Especially when you’re someone that someone else wants to keep oppressed. 

You shouldn’t let people convince you that standing up for yourself is wrong. You shouldn’t let people convince you to tolerate touching you don’t want. It may be that threats of violence will be the only thing you can do with some people (violence was the only thing that worked against bullies in school) but let’s see if we can’t find something you are more comfortable with that will work on most people.

First of all, if you’re dealing in people you know won’t seriously harm you, you could try a threat of much lesser violence: pinching. You may have to follow through on it with some people, but most people really don’t like being pinched and if you feel like it’ll make someone back off (and make you feel less guilty) give it a try.

Something my husband suggested was carrying a small water gun with you and squirting people with it when they touch you against your will (it does often work on cats, after all). Again, since this is probably going to annoy people, be careful who you use it on and you should probably give anyone you do use it on a warning first. 

You can also try saying “Ow” really loudly or screaming like you’re in pain, or something similar. Something that will make other people feel uncomfortable and guilty—which they should. 

Whatever you try, always keep your own safety in mind. And though it can be hard, avoid those kind of people whenever you can. People who have so little respect for your feelings that they touch you against your will are not good people. Even when it’s family, such behavior is toxic. You’re not the one at fault here; they are.

(If anyone has any further suggestions or knows some nonviolent techniques that work in these situations, please send them to my inbox.)

Rebloggable by request

Feb 12, 201321 notes
#autism #actually autistic #actuallyautistic #violence #consent #bullies #bullying #Autism Problems #Unwanted touching
Re: Responding to boundary violations - I've only had to do it once, but I had excellent results with reacting as if I was about to be assaulted: falling to the ground and curling up in a ball to protect my neck and belly. That might get a bit of a bad reaction depending on context, but it's a non-violent option that should get the idea across that whatever the offending person did shouldn't be done again, if only to avoid a scene.
Feb 12, 20133 notes
#autism #actually autistic #actuallyautistic #consent #ableism
i think anyone who was self-diagnosed at some point is afraid of being "that self-diagnosed allistic". i know that i'll sometimes wonder if i'm just making up my symptoms to try to be "special", especially since some of them (flapping, particularly, but also some other things) either started or got worse since i self-diagnosed. but then i remember that i wouldn't be diagnosed with NLD if there wasn't SOMETHING there, and everyone i know agrees with me, so then i feel better. </rambling>
Feb 11, 20137 notes
#autism #actually autistic #actuallyautistic #diagnosis #self diagnosis
I know that physical violence is wrong, but I've found that it's the only way to get people to respect my boundaries. I feel terrible for enforcing personal space rules with threats of hitting people, but I don't know what else to do. I need people to not touch me, and when I tell them "don't touch me", it just makes them do it more.

I’m going to say something here that might be a bit controversial, but I think it needs to be said.

It’s true that in most situations, avoiding violence is best. But we should never forget that the idea that violence is wrong is often used as a tool of oppressors to keep people oppressed. Think about it: People are perpetrating violence (and yes, it is violence) against you, yet you’re the one feeling guilty. Because so many of us live in a society so twisted that many types of violence against people are accepted and normalized, but standing up for oneself is demonized. Especially when you’re someone that someone else wants to keep oppressed. 

You shouldn’t let people convince you that standing up for yourself is wrong. You shouldn’t let people convince you to tolerate touching you don’t want. It may be that threats of violence will be the only thing you can do with some people (violence was the only thing that worked against bullies in school) but let’s see if we can’t find something you are more comfortable with that will work on most people.

First of all, if you’re dealing in people you know won’t seriously harm you, you could try a threat of much lesser violence: pinching. You may have to follow through on it with some people, but most people really don’t like being pinched and if you feel like it’ll make someone back off (and make you feel less guilty) give it a try.

Something my husband suggested was carrying a small water gun with you and squirting people with it when they touch you against your will (it does often work on cats, after all). Again, since this is probably going to annoy people, be careful who you use it on and you should probably give anyone you do use it on a warning first. 

You can also try saying “Ow” really loudly or screaming like you’re in pain, or something similar. Something that will make other people feel uncomfortable and guilty–which they should. 

Whatever you try, always keep your own safety in mind. And though it can be hard, avoid those kind of people whenever you can. People who have so little respect for your feelings that they touch you against your will are not good people. Even when it’s family, such behavior is toxic. You’re not the one at fault here; they are.

(If anyone has any further suggestions or knows some nonviolent techniques that work in these situations, please send them to my inbox.)

Feb 11, 201312 notes
#autism #actually autistic #actuallyautistic #Autism Problems #autism spectrum disorder #violence #consent #unwanted touching #bullies
I'm 98% sure that I'm autistic (and I have done extensive research, it took me 3 years of studying into it.) Thing is, whenever I see posts about allistic people being bitchy about autism (e.g. my brother has autism, I flap my hands - I MUST be autistic, etc.), I get uncertain again, because I'm afraid of self-diagnosing and being that one annoying allistic person. Thing is, I don't want to get an official diagnosis, because it'd give me more cons than pros, you know. Welp.

Here’s the thing: The problem with that particular allistic person is that all they’ve done is look at a symptom or two (maybe a list of symptoms) and declared themselves autistic. Of course they’re going to pick up certain small habits–like hand flapping–from their sibling, because that’s what humans do. But that’s not all autism is about, and that particular kind of allistic person doesn’t stop to consider that. 

The two key pieces, I think, are knowing what autism is and actually knowing autistic people (and as we all know too well, knowing autistic people does not guarantee knowledge of autism). My husband’s school psychologist once said that my husband had a “lick of Asperger’s” (side-eyeing so hard right now) but my husband, having known me for so many years now, doesn’t feel he’s autistic at all. Certainly he understands better than most allistics, but he’s well-informed enough to know the difference between having autism and having some things that are similar to symptoms of autism. 

It sounds as if you’ve done your research, so that’s not the problem here. No matter what, you’re not the person going “Guys, I looked at a list of autism symptoms because my brother is autistic and I totally think I am too!” Most of us on Tumblr are not going to have a problem with you identifying as autistic.

If you’re still feeling uncertain, though, one thing you could consider doing is sitting down and writing out a list of why you feel you’re autistic. If the list comes out short and/or shallow, maybe you need to reevaluate. But if not, relax a little–you’re definitely not that allistic person, okay?

Feb 8, 201314 notes
#autism #actually autistic #actuallyautistic #self diagnosis
my whole family imitates the cats when they meow and I'm the only one on the spectrum, and we're all "adults" now--that's what's normal in my house. But be a fly on a wall in seven different houses on the same street and you'll get seven different normals.

Yeah, my husband (who’s allistic) and I do that too. My cat makes some noises that are really fun to imitate. XD

Feb 8, 20136 notes
Feb 7, 2013171 notes
#autism #actually autistic #actuallyautistic #autistic hedgehog #autism spectrum disorder #ableism #STEM #science #technology #engineering #math #simon baron-cohen
Feb 6, 2013112 notes
#autism #actually autistic #actuallyautistic #autistic hedgehog #autism spectrum disorder #Autism Problems #ableism
If a child copies someone it can be annoying, but they normally stop when they see it's annoying. However an adult copping someone exactly isn't normal, I don't care if they're 'late' it's not normal and I would find it ridiculously annoying

Well, maybe you need to grow the fuck up then, you ableist asshole. You copy people too; you just don’t realize it. 

Feb 6, 20139 notes
#autism #ableism #Echolalia #fuck off
The punk (that's the right word?) in the spiky jacket as a hedgehog amuses me, since one of my emerging interests is body modification. I have to wonder if on some level I'm just a hedgehog collecting/adding quills. ^^;
Feb 6, 20131 note
oh my god, I'm so glad you reblogged my hedgehog. ♥ I didn't know this page existed, but being autistic myself (more precisely, diagnosed with "features of autism") I'm so glad people could relate to it in that way! /elisdraws, from his private blog

More hedgehogs are always welcome here! Especially when they draw cute little punk hedgehogs! :D

Feb 6, 20131 note
Rebloggable by request
so basically the idea of ‘special interest’ is a way of pathologicising (spellcheck says this isn’t a word but you can too make a verb out of pathological) normal human behaviour and interest because the interest andor the person who has it is “different”?
External image
 Anonymous

For clarification, this is in regards to this post.

That’s exactly it, and it’s done with a lot of behaviors you see in every child on the planet, regardless of whether they’re autistic or not. All children learn by mimicry (echolalia), for example, but autistic children may start this behavior much later than allistic children. Even if it goes away (whether it does or not is dependent upon the individual and circumstances) it’s still looked at as a symptom and as something “abnormal” when all it really is, is just a bit late. 

(Incidentally, even if echolalia doesn’t go away in an autistic person, this isn’t anywhere near as strange as “experts” want to make it out to be, because it doesn’t technically go away fully in allistic people either. Although most of themnever realize, they will continue to echo people who are around them constantly, picking up on said people’s mannerisms and speech patterns, throughout their entire lives. They’ll even do it at times with people they’ve just met: for example, it’s a perfectly normal (and instinctual) thing for someone to mimic the sitting position of someone they’re talking to if they’re interested in that person. Pfft to you, “experts.”)

So yeah, us being “different” makes people pathologize our behavior regardless of how actually normal it in truth is. I explained it to my husband like this:

If an allistic child shows a keen interest in serial killers, people will assume they have a future as a profiler for the FBI.

If an autistic child shows a keen interest in serial killers, people will assume they have a future as a serial killer. 

That’s just utter bullshit, but it doesn’t stop people from treating us like it’s true. 

Feb 6, 201312 notes
#autism #actually autistic #actuallyautistic #ableism
so basically the idea of 'special interest' is a way of pathologicising (spellcheck says this isn't a word but you can too make a verb out of pathological) normal human behaviour and interest because the interest andor the person who has it is "different"?

For clarification, this is in regards to this post.

That's exactly it, and it’s done with a lot of behaviors you see in every child on the planet, regardless of whether they’re autistic or not. All children learn by mimicry (echolalia), for example, but autistic children may start this behavior much later than allistic children. Even if it goes away (whether it does or not is dependent upon the individual and circumstances) it’s still looked at as a symptom and as something “abnormal” when all it really is, is just a bit late. 

(Incidentally, even if echolalia doesn’t go away in an autistic person, this isn’t anywhere near as strange as “experts” want to make it out to be, because it doesn’t technically go away fully in allistic people either. Although most of them never realize, they will continue to echo people who are around them constantly, picking up on said people’s mannerisms and speech patterns, throughout their entire lives. They’ll even do it at times with people they’ve just met: for example, it’s a perfectly normal (and instinctual) thing for someone to mimic the sitting position of someone they’re talking to if they’re interested in that person. Pfft to you, “experts.”)

So yeah, us being “different” makes people pathologize our behavior regardless of how actually normal it in truth is. I explained it to my husband like this:

If an allistic child shows a keen interest in serial killers, people will assume they have a future as a profiler for the FBI.

If an autistic child shows a keen interest in serial killers, people will assume they have a future as a serial killer. 

That’s just utter bullshit, but it doesn’t stop people from treating us like it’s true. 

Feb 5, 201316 notes
#autism #actually autistic #actuallyautistic #echolalia #Special Interests #ableism #so-called experts
I hate that that anon feels terribly about it. Albeit it may be about a certain story, remember that there are MANY MANY other books or stories that could fit the meme very well.

In regards to this post.

Feb 5, 20132 notes
#autism #actually autistic #actuallyautistic #previously on...
Feb 5, 201334,815 notes
#autism #actually autistic #actuallyautistic #autistic hedgehog #hedgehog #hedgehogs #art #submission #submissions
Sorry for the ignorance, Ive never had an autistic person close to me so I dont really understand it. I know there are different levels of autism, but are there like set levels, like someone has "stage 3 cancer"? Also Im really worked up about..ctd..

I think this was supposed to have a second half? IDK.

Although allistics (non-autistics) have assigned the classifications “high-functioning” and “low-functioning” autism, those really don’t work very well for what autism actually is. Autism is a spectrum, and no individual sits firmly on one spot of that spectrum. Even people who appear “higher” or “lower” functioning tend to sort of…slide around, I guess you could say. 

It’s all dependent upon the situation. In a normal situation where I’m perfectly comfortable, a lot of people would never tell I’m autistic. Start piling on certain stimuli and the like, though, and that can change. I’m terrified of needles and when I have to get bloodwork, we (my husband and I) usually instruct people to handle me as if they’re handling a small child. I hate that, it’s humiliating, but it seems to be the only thing people understand. (And incidentally, last year I ended up with even worse trauma than before, because something got lost in translation and I ended up surrounded by three people who stuck me with a needle roughly half a dozen times.)

Beyond functioning labels there really aren't levels of autism. There’s a spectrum and symptoms and individuals; that’s it. And a number of actually autistic people don’t care much for functioning labels.

P.S. For any allistics reading this: Absolutely DO NOT go around treating autistics like small children because you think something might be upsetting or overstimulating for them. That is a precaution I choose to take to protect myself, and one I wouldn’t have to take if there wasn’t so much ignorance about autism spread around. 

Feb 5, 201312 notes
#autism #actually autistic #actuallyautistic #functioning #functioning levels
New Rule

Due to recent circumstances I’m changing the way I do things here.

Previously I would go on memegenerator to see if any new memes had been made, and pick some to post if there are (because for the most part, no one sends me any). Generally I’d only choose ones I was certain I understood, without needing further context. (So if you were wondering why I didn’t pick yours, it was probably just because I was entirely positive what it was saying. Communication issues; y'all know how it is, I’m sure.)

I’m not going to be doing that anymore. If you want a meme put up, you have to submit. You’re welcome to just send me the text and I’ll make it into meme form myself, or send me a link tot he meme, but you have to submit it. Because I have no way of knowing what people want or being sure what they mean.

That does mean, however, that you probably won’t see much on AH unless someone has submitted something (I can only make so many hedgehogs, after all) so if there are long periods of lull, that will be way 

Feb 1, 20131 note
#rule change #new rule #rules #Submissions #submission #meme #memes #autism #autistic hedgehog #actually autistic
I made the memes "allistic writes a story about autistics" and "allistic thinks autistics don't like porn" about a story and I was annoyed. But now I feel bad about the memes being out there like this because the writer wrote a bunch of sequels where autistics made friends with each other and flapped their hands to show happiness, and two fell in love. And the allistic wrote a political statement that she supports difference and we're just different and not bad. And the memes don't show that.1/2

Continued: it was written for a time-sensitive prompt. And the allistic did research but only found the Wikipedia article and tried to be respectful to the inaccurate depiction. And afterward has done research from autistic-written sources. She developed good autie characters and some are really creative and others are geniuses because of the particular setting’s limitations about who would be there. She was uninformed but really respectful and is educating herself. I no longer support my memes.

——————————-

I’ve been thinking about how to deal with this for a while. I didn’t have context when I chose those memes to publish; I didn't need context, because I know most of us have experienced these exact circumstances (as evidenced by the amount of notes each meme got). I didn’t know there was a context, because this looked like ordinary, generalized stuff.

In fact, anon, had you never said anything, no one would know. No one would suspect. And I doubt anyone now could easily figure out what author and story you’re talking about, because the internet is large and this stuff happens all the time. 

So now I have a dilemma. I’ve sworn in the past that I would remove memes if asked, but at the same time, I’ve got a lot of people who related to those memes. Just because you don’t stand behind them, anon, doesn’t mean they didn’t mean something to someone else. After all, none of us knew they were specific. So if you want them down, you’re going to have to say so. I’m not going to make the decision for you because, frankly, I’m done making decisions for people and there’s going to be some changes to how I do things here. 

Feb 1, 20131 note
#autism #autistic hedgehog #meme #memes
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