Autistic Hedgehog

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Posts tagged with "actually autistic"

I prefer characters that are obliquely autistic -- where the medium doesn't say it explicitly and leaves the viewer to their own conclusions. I get anxious when a character is described as autistic, because so many of those portrayals are all about *how hard it is to deal with autistics* or about *magic autistics* instead of being interesting stories about interesting people.

I think that’s a little bit of a double-edged sword, as it often is with a character of any kind of minority status. Because people will make assumptions, like how if a character of color isn’t in some way explicitly stated as such, white readers will assume the character is white.

At the same time, there are stereotypes and other problems to deal with when a character is explicitly autistic. Currently I think media representation is largely a lose-lose situation; either the representation is loaded with stereotypes, or it’s not explicit and therefore it’s questionable whether it truly counts as representation.

Do you or any of your lovely hedgehogs have a problem with a person without autism following this blog? I'd hate to upset or offend anyone and I certainly don't want to come off using my able-bodied privilege.

Generally, anyone is welcome at AH, and a few people who don’t have autism have told me it’s been very informative, following this blog. The only rule is that allistic people don’t come in and try to police us and how we express ourselves here. It is, above all else, a safe space for us. Respect that and you’re more than welcome to follow. 

[“I’m raising a child with autism. What’s your superpower?”
Resisting the urge to strange every person who thinks they’re Captain Good Parent for raising an autistic child.]
Could we please just stop acting like raising an autistic child is something that requires being bitten by a radioactive spider or being a bulletproof alien from the planet Krypton? Please? Because it’s really fucking insulting to have people say things that imply that the very act of raising you requires greater than human ability. 
P.S. Before any allistics try to crawl into my inbox to gaslight me with how I don’t understand what’s really being said here, I’d like to make it abundantly clear that I have no fucks to give. If your intentions are really so good, fucking think harder next time about how you sound when you say this shit! 

[“I’m raising a child with autism. What’s your superpower?”

Resisting the urge to strange every person who thinks they’re Captain Good Parent for raising an autistic child.]

Could we please just stop acting like raising an autistic child is something that requires being bitten by a radioactive spider or being a bulletproof alien from the planet Krypton? Please? Because it’s really fucking insulting to have people say things that imply that the very act of raising you requires greater than human ability. 

P.S. Before any allistics try to crawl into my inbox to gaslight me with how I don’t understand what’s really being said here, I’d like to make it abundantly clear that I have no fucks to give. If your intentions are really so good, fucking think harder next time about how you sound when you say this shit! 

Thank you for running this amazing blog! It gives me a lot of relief to know other people on the spectrum feel the same way I do about issues like the whole April awareness month. It's good to escape from the ignorance and be around some fellow hedgehogs.

Anonymous

I think this calls for Cactihog!

image

Re: autistic characters - To be honest, I quite like seeing autistic characters (although obviously I get annoyed if they're just perpetuating stereotypes). I don't know, I guess I like being able to relate to them. :)

[“My son has autism but he’s not autistic!”
So does he keep it in a jar on his shelf or something?]
No, I’m not kidding or exaggerating. This is the sort of shit drifting around the autism tag right now. Rhetoric like this. 
This is why “person with autism” is such problematic language. Some parents try to defend it with claims that it’s because they see their child as a person first WHARGARBL. I suppose there’s something to be said for this person’s honesty. 
Please note that I’m not saying autistic people shouldn’t define themselves as “people with autism” if they so choose. But allistic people have no right to dictate what language gets applied to us. Whether they realize it or not, when they talk about “people with autism” a part of them is trying to separate autism from person, as if autism is some parasite that has taken up residence in their child’s body rather than a very real part of their child. 
This is a genuine–though slightly paraphrased–quote from a person who honestly believes having autism and being autistic are two distinct things. That attitude is vicious and harmful, so when you see autistics speak out against person-first language, know that this is why. 

[“My son has autism but he’s not autistic!”

So does he keep it in a jar on his shelf or something?]

No, I’m not kidding or exaggerating. This is the sort of shit drifting around the autism tag right now. Rhetoric like this. 

This is why “person with autism” is such problematic language. Some parents try to defend it with claims that it’s because they see their child as a person first WHARGARBL. I suppose there’s something to be said for this person’s honesty. 

Please note that I’m not saying autistic people shouldn’t define themselves as “people with autism” if they so choose. But allistic people have no right to dictate what language gets applied to us. Whether they realize it or not, when they talk about “people with autism” a part of them is trying to separate autism from person, as if autism is some parasite that has taken up residence in their child’s body rather than a very real part of their child. 

This is a genuine–though slightly paraphrased–quote from a person who honestly believes having autism and being autistic are two distinct things. That attitude is vicious and harmful, so when you see autistics speak out against person-first language, know that this is why. 

You seem to be very knowledgeable about autism so I was wondering if you could help me disabled representation in general? My... I'm not sure what the term for it is? Well-bodied? My well-bodiedness leaves me ignorant even though my boyfriend has aspergers and I really don't want to be offensive at all, I really just want to learn and bit and I wonder if you'd be willing to lend me your ear. If not its totally 100% okay and I don't want you to think I feel entitled to your teaching.

Just for reference in the future: I know some people don’t like to answer questions, and it can be tiring to educate others, but as long as I’m approached politely, without prejudice or assumptions, I’m always willing to answer. Having weighed it against the alternatives, I’ve decided I’d rather answer a thousand questions than let groups like Autism Speaks answer even one

It’s really good that you want to know more. I’ve dealt with a lot of significant others who couldn’t be arsed, and it’s very disheartening. For starters, I actually answered a question about advice for dating autistic people about a week ago, with some basic tips, which you can find here. It’s sort of “Dating Autistics 101.”

Anything else you want to know, I’ll do my best to answer (and some of my fellow hedgehogs may chime in too, if they’re feeling like it). Since you care enough about your boyfriend to ask in the first place, I’ll do my best to help you learn what you need to know. 

The anon who left a message about the neurologist reminded me of a therapist I had long before I started reading into Aspergers/autism; he would always tell me that everyone struggles about the things I wanted help with (like social problems especially). And I guess he meant that to be comforting, but to me it always just sounded like "Your problems will never get any better" - or else like he just didn't understand what I was trying to say. He was not my therapist for very long.

Anonymous

Curiously, does anyone else get triggered watching movie/tv shows with autistic characters? I watched Temple Grandin when it first came to DVD, and I struggled to breathe (that happens when I have a sensory fit).

Anonymous

That’s an interesting question. I haven’t watched anything with characters that are acknowledged in canon as autistic, or about real autistic people, so it’s not one I can really answer.

Anyone else? 

Rebloggable by request

You type on here with such perfect grammar a large vocabulary and very well educated. By reading your posts you don’t sound like you have autism. I recently worked with kids in year 6 who had autism and not one of them in the class could read or write beyond the level of a preschooler/kindergarten. I guess what I’m asking is how this all works?
 Anonymous

*deep breath*

I’m going to try to answer this without exploding. Try. Because if you’ve actually been reading my posts and, you know, absorbing them, I shouldn’t need to answer this at all.

I think I’ve said on here about a thousand times that autistics are all different and that functioning labels are meaningless. But let’s examine why I might be so different from the small handful of autistic children you know. Since clearly “I am not them” is not a satisfactory answer for you, let’s try some sordid details instead.

(For my Hedgehogs: Trigger warning for ableism, bullying, abuse, suicide and rape.)

Oh, I suppose not all of it is sordid, as such. I wasn’t diagnosed until I was nine. Although I’ve had an ADHD diagnosis practically since I was in the womb, and my mom always felt the doctors missed something about me, no one acted like I was a useless shell of a person who would never amount to anything (that came later). It wasn’t assumed or expected that I couldn’t learn to read, couldn’t learn to write, couldn’t be a well educated individual. Hell, my mom started teaching me to read when I was about three (though admittedly this could be so she wouldn’t have to suffer through Kittens Are Like That again). When I developed my first special interest and started reading books on horses all the time, no one tried to stop me or scold me, because reading was good.

Perhaps these kids you’ve worked with never had those benefits. Perhaps people always treated them like they would never be worthwhile people, like they couldn’t learn to read or write anyway so why bother teaching them? Or perhaps it’s just not their strength. You see, it is mine.

I’m a writer and I’ve been writing for fifteen years, but I’ve always had a particular knack with words. When I was tested in sixth grade, I was found to be four years ahead of my reading level (which was probably not even fully accurate since I was already reading novels for adults at that age). For my entire life I’ve known words—known the meanings to words—that I’d never even heard before. “The world is made up of the greatest composition of numbers and letters.” I said it when I was…four? Five? I couldn’t have been more than six when I once described myself as “feeling like a pile of used up rags.” 

You see? When people talk about autistics with special talents, they think of doing large sums in their head like Rain Man or being able to play a song on the piano after hearing it only once. But my gift, my talent, is words, communication. I don’t communicate well in spite of my autism, but because of it. 

But I mentioned sordid details, didn’t I? And really, the good is nice, but I’m not me without the bad.

It’s funny you should call me “very well educated” because I’m not; not in the typical sense. My world started going to hell after my father committed suicide. By the time I was twelve, I was being viciously bullied in school. I was cornered and hit in the locker room, I was surrounded and harassed at my desk, I got rocks thrown at me on the way home from the bus stop. I didn’t know it for some time, but the other students ganged up to tell lies about me, accusing me of being the bully, telling teachers I called them names and swore at them (I never even swore when I stubbed my toe, back then). I can remember sitting and listening to the lies, opening my mouth to defend myself and being shushed, viciously, by my so-called guidance counselor. 

No one believed me. Even I didn’t believe me. I have one of the sharpest, longest memories you’ll ever encounter, and I spent years thinking I was going out of my mind, because I couldn’t remember any of these things I supposedly did. And I hate talking about it, because people don’t like to believe that children can be that horrible. But they can and they were, and I was surrounded by adults who saw my difficulties expressing “proper” allistic emotions as proof I was lying. Adults I couldn’t look in the face because I could never trust them.

I was home-schooled part of the year in both 6th and 7th grade, and for all of 8th grade. Despite that, I tried going back to school for high school. My education was never steady or stable again. I couldn’t stay full days—by the end of the day I couldn’t breathe from the panic—and I missed a lot of classes. Much of my “very well educated” comes from educating myself. And while all this was happening, when I was only fifteen, I was lying still while my boyfriend raped me, because I’d been so lonely for so long that I was terrified of losing him and the friends he’d brought into my life. I spent years feeling like a stupid little girl who should have known better than to let him do that.

But like I said, I educated myself. And not just in terms of writing or reading or anything else. I educated myself in you. In allistics. I learned to read you better than you can read each other—but even so, I rarely trust my own judgment. I ought to, but my instincts have been so battered by the years of abuse that I can’t. Give me time and I can learn people, learn how they’ll react in a given situation better than they know themselves. And I know me. I spent hours upon hours in introspection, being far more brutally honest with myself than most people will ever be. I know how I act, why I react, why things hurt me…and I’ve put it all together to decode the world. To survive the world.

Do you know how exhausting it is to never be able to let your guard down, ever? To always have to study people, to actively read their non-verbal language, to vet every single thought that comes through your head to make sure it’s not offensive, and to have to do it all at the speed of thought? To smile and look people in the eyes—or fake it—even when you don’t want to? Because that’s my life. I communicate well now verbally too, but I didn’t always. It was only when I was writing that things always fell into place, that I got it right, that I was on the same wavelength as other people. Only when I’m writing that it’s not another long, drawn-out battle to appear just like everyone else. 

That is how it works. How it works it that we’re all different people, but we are people. We’re not empty husks who live our lives unaffected and unchanged by the world around us. Oh, it affects us, all right. It changes us. For many of us, it stuffs us into a box and then praises us while we huddle there, cramped and in pain but doing what society thinks is “right” and “acceptable.” Others are dubbed such worthless lost causes that there’s little point in trying to shove them into the box, because they’ll never go in anyway. Very few people ever care to see what happens if they try to adapt to us instead.