Autistic Hedgehog

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Posts tagged with "actuallyautistic"

This is a rant, and I apologize. I'm a 29 year old, married autistic woman. I recently revealed at work that I'm 15 weeks pregnant, and instead of the congratulations that my other coworkers have recieved I was simply asked "Can autistics get pregnant?". I'm still confused - my autism effects my mind, not my uterus. Then they asked if I was "emotionally capable" of caring for a baby. They have all been reported to HR. I just don't understand why they thought it was okay to say those things.

Anonymous

I’m so, so sorry they did that to you. That was the product of ignorance, ableism and privilege, plain and simple, and it was wrong. They thought it was okay because ableism is deeply ingrained in society, and people are taught all the wrong things about autism—and sadly, they thought it was okay because in truth, allistics aren’t naturally more empathetic than us. They just assume they are and many of them never teach their kids true empathy.

But they’re also wrong. Why shouldn’t you be emotionally capable of caring for a baby? Don’t let them get you down. This is a big thing in your life, and you deserve to be happy about it.

And congratulations! 

my therapist told me i wasn't autistic because i speak well (i'm gifted and my area of skill is language) and "show emotion and empathy" is she bullshitting me or was she right?

I’m alarmed by the amount of these questions I get. Holy crap, what are they teaching psychiatrists and psychologists these days? (Fellow Hedgies, that was rhetorical.)

I don’t know if I’d say she was bullshitting you…more like she’s ignorant as fuck. She’s not right. She’s wrong. Bad wrong. Badong. Just like allistics, we have all kinds of skills and talents, and we certainly don’t lack emotion or empathy. That’s an unfortunate bit if ignorance that’s been spread around for far too long. Maybe your therapist needs to read up on things like the Intense World theory. Times, they are a’changing. 

it kept telling me my ask didn’t work…

hi, i really like your blog! i tried to do this in an ask but it kept telling me i had links in it… but it didn’t. i kind of need help and i know that’s not exactly your blog’s point but i thought i should try. 

i am 20 years old. my parents and 3 mental health professionalfolk think i might be on the autism spectrum. the three people i love most and who know me best think it’s a possibility. one person i know on the spectrum does not think i am and this is what makes me particularly unsure. i am confused. there’s so much i identify with, so much so much, on the spectrum not-otherwise-specified slightly aspergersy. but as with all mental-psychology stuff, that could have a different explanation. especially since nobody said anything during my childhood, and whatever symptoms i have aren’t ‘extreme.’ no one has given me a solid answer.

i want so badly to have a real diagnosis. i want so badly to have a name for what’s in my head. i want so badly to find help and to find people who understand. but i would feel guilty identifying as being on the spectrum because i might not be there and i don’t want to offend or trouble people who are.

do you have any advice they can possibly offer on figuring these things out?

———

Hopefully this goes through correctly. Tumblr can be a bit wonky at me when I edit submissions. >.<

Sorry it’s taken so long for me to answer, things have been a bit…rough for me lately. As to your question:

It sounds like you and quite a few other people you know feel you may be on the spectrum. Just because one person who’s on the spectrum doesn’t think so doesn’t mean very much. The thing is, we’re all different. It’s a spectrum because there’s a lot of variation, and it can express very, very differently. A good example: Autistic headcanons differ a lot. There’s a number of characters other autistics view as autistic that I don’t, and vice versa. No one character will read autistic to all of us, because our experiences of the world are all different, so if someone on the spectrum doesn’t think you are, that’s only one opinion.

There is absolutely nothing wrong with wanting a diagnosis, and you shouldn’t feel ashamed by any of this. Even if you end up diagnosed with something else (ASD symptoms can overlap with other things), no one has a right to tell you that you should be ashamed.

And honestly, even if your diagnosis does turn out to be a different one? I for one would not be offended that you thought you might be autistic, and I don’t have much patience for anyone who would be. Because so many of us have been there, wanting to understand these differences in ourselves, needing to put a name to it. You’re not some dudebro looking at a list of Asperger’s Syndrome symptoms on the internet and using them as an excuse to be a jerk. You’re one of us, someone who wants to understand why their world seems different from everyone else’s, and your feelings are valid. Don’t let anyone tell you otherwise. 

I was diagnosed with delayed developmental disorder as a kid

the doctor then explained that it was “under the umbrella of Aspbergers.” My mother decided that no, I wasn’t and that was the last I ever heard of it. I did some research when I was younger, but I was in some pretty heavy denial. My lack of social skills were always swept under the rug by my parents and passed off as a product of too much internet and they suspected I was on drugs years before I even started doing them.

Now I’m 20 and only starting to take this seriously. I have legitimate problems socializing and connection with people, to the point where it becomes difficult to go to school or find a job.

I desperately want to be outgoing and social and the kind of person who’s friends with everybody (or has the ability to be, because when it comes down to it, I don’t like most people.) but when it comes to actually interacting with people, I get overwhelmed, depressed, and withdraw.

[Put your hands on me again
And I&rsquo;ll tear them off]
Okay, so that might be a bit violent, but in my defense, it&rsquo;s been building up for a while. It came to a head this afternoon, on my way home from PT. I was waiting for the bus when some woman decided she had a right to push me out of her way.
And I don&rsquo;t mean she pushed past me. I mean she put her fucking hands on me and shoved. This isn&rsquo;t the first time that&rsquo;s happened, and it likely won&rsquo;t be the last, either, but it pisses me off. 
Anyone who thinks they have a right to just put their hands on someone needs to go step on a Lego. STAT. 

[Put your hands on me again

And I’ll tear them off]

Okay, so that might be a bit violent, but in my defense, it’s been building up for a while. It came to a head this afternoon, on my way home from PT. I was waiting for the bus when some woman decided she had a right to push me out of her way.

And I don’t mean she pushed past me. I mean she put her fucking hands on me and shoved. This isn’t the first time that’s happened, and it likely won’t be the last, either, but it pisses me off. 

Anyone who thinks they have a right to just put their hands on someone needs to go step on a Lego. STAT. 

Have you ever heard of the Wendrow case? What are your thoughts?

Anonymous

The Wendrow case. My thoughts on the Wendrow case…hoo boy. I didn’t know about the Wendrow case until I received this ask, and in the end, I had to have my husband read up on it for me, because I couldn’t get through a single article without crying. They were that nauseating. It’s hard to elucidate my feelings on this, when every article I found didn’t bother much with facts and chose instead to exonerate the father and lavish stomach-churning amounts of pity on him. 

Trigger Warning: Rape, abuse, ableism.

For those who don’t know, the Wendrow case involved a young non-verbal autistic girl who, via a method of communication known as Facilitated Communication, made claims that her father had raped her multiple times. To make a long short story, in the end, because she couldn’t perform like a trained monkey in court, her father was acquitted. 

Do I sound bitter? I can’t help it. The articles really were gross. Just the very fact that the police taking the girl’s word as true is regarded as them “not trying to find the truth” is enough to make me want to cry. My feelings on the matter are thus a bit tangled, and revolve mostly around the criticism (dare I even call it) of Facilitated Communication, which is so rife with allistic privilege, I want to slap someone.

Those who are tested—yes, tested—sometimes prove unable to communicate via FC under pressure, and people (all of them allistic) generally ask “How could it be that someone who can otherwise write speeches etc. etc. etc. with this form of communication suddenly can’t use it in a testing environment?” And because they’re allistic (and maybe because they don’t remember or know how uncomfortable testing environments are) they figure, hey, FC must not really work, and it must be the words of the Facilitator and not the autistic person themselves.

They think this because they’re allistic and thus they’ll never be stuffed in a box like a guinea pig and asked to prove that their method of communication is viable, knowing all the while that if they fail, their rights as a human beings will be stripped from them. 

So when using FC in court, all the girl was able to produce was gobbledegook, which led to the father being acquitted. Her Facilitator, according to my husband, was painted really atrociously in the articles, while the father was held up as the poor victim of a misandrist witchhunting country out for tasty tasty manblood. And maybe he is innocent, but when I think about this, I can’t help but doubt. Consider how many allistic women can’t handle the pressure of a rape case. Hell, I know that I, having already faced the pain and horror of being judged unfairly due to my struggles with communication, might not be able to handle what they asked of this girl. I, who can speak for myself, am not sure I would’ve fared any better in court. 

I can’t sit here and accept that FC doesn’t work and the father is innocent, because I know what it’s like to be autistic from the inside. And even if he is innocent, it doesn’t matter. It doesn’t matter because no matter how many times FC does work, it’s cases like this one that will be used as precedent instead. It’s cases like this one that will be used to strip autistics of their rights and force them to remain in unsafe environments.

In all the furor to condemn the case, no one in the press stopped and thought. They didn’t think “holy shit, this girl might have been sent back to a man who constantly rapes her.” That’s the thing. She might well have gone home to a place where she’s raped every day and can do nothing to defend herself. And even if she wasn’t, other autistics will be, helped along by this case. And I can tell you how that makes me feel: It fucking terrifies me. 

So uh…I’m an aunt

And apparently have been for 7 months.

Before anyone congratulates me, I’d like to explain that this isn’t really happy news for me. It could have been, but instead it left me devastated. Allow me to explain.

I haven’t spoken with most of my family for years. My mom is abusive and neglectful, and most of my family members treat me like I’m a soulless freak. My sister was the last family member I was still talking to, but a couple years ago that ended too. Something happened, and when I was honest about my feelings about it, my sister twisted everything I said and made it all about her. As usual, the way my emotions are is not acceptable to my family. And the fact that I believe forgiveness takes work and won’t simply continue sweeping the way they treated me under the carpet makes them believe I’m a heartless, unforgiving monster. 

So I walked away. For the sake of my health, so I could stop hating and doubting myself, I walked away and hoped that one day my family would understand my point of view.

Clearly, they don’t.

Last night, out of the blue, I received an incredibly passive aggressive email from my sister, stating that I’d been an aunt for seven fucking months and she

was going to write sooner but wasn’t sure if I could handle the response or probably the lack there of.

Because obviously I am an evil heartless monster who wouldn’t be happy for her. 

I wasn’t even given a chance. Just like always, my family makes huge assumptions about my emotions, about whether I even have them. After all this time, they still believe they’ve done nothing wrong and I’m just cold and heartless. They think I have no heart to break, no soul to bruise, and that’s not true. I took me a long time to stop crying; my eyes still feel swollen and cruddy. I’m trying my best to cope with this, on top of everything else in my life, on top of the fibromyalgia and the depression, but I’m just so tired.

And the worst part was discovering how easy it is for all my hard work to be torn down. I thought I would go the rest of my life without wishing that I wasn’t autistic, that I was just like everyone else. I thought I had finally accepted that the problem isn’t me, it's them. Last night I discovered how fragile those things are. Those feelings don’t just stop, simply because we’ve removed ourselves from what causes them. Now I know they might always be there, waiting for me. 

I hurt so much. I’m angry and frustrated and in a complete lose/lose situation. Unless I want to give in and ask for forgiveness when I’m not the one who’s in the wrong, nothing I do here will make a difference. I’m not like the rest of my family and so I will always be the cold, heartless one to them.

I guess the reason I’m mentioning this is because it might be a little quiet here at AH for a while. I’m still struggling to cope with all the other things; this has knocked me on my ass. It will take a little time to put the pieces back together, and I don’t actually know how much I’ll get done during that time. I figured an explanation was in order.

Oct 4

shortly after delivering the strong suggestion of autism, my therapist pointed out that of all the things I could pick, my chosen major in college was anthropology. I literally picked the study of humans and why they are they way they are. I am not sure to what degree being autistic can actually be said to influence that, but I can see how one might think that I was so baffled by the creatures around me I just gravitated to anthro. BIZARRE CREATURES ALL OF US.

Anonymous

I think it’s not actually that uncommon for us to be interested in people. I’m fascinated by history and culture, and if I’d known about anthropology (and had the money) I might have gone into that field myself. And I know I’m not the only autistic to feel that way, either. 

I don’t know how much us being autistic has to do with it. Maybe some, maybe a lot, maybe none. Maybe, because we already have to study people a lot, it’s easy to get fascinated by it. Or maybe we have the same ratio of interest in things like anthropology as allistics do. Now that’s a study that would potentially be interesting; not how many of us go into STEM. 

Oct 3
[&ldquo;Until all the pieces fit.&rdquo;
Hey look, I&rsquo;m working on it, but you allistics are hella difficult to figure out.]
Sorry, guys, I know it took me a pretty big chunk of my 20+ years to get it down, but you&rsquo;re tough. You do all these weird things, like beat around the bush instead of saying what you mean, and bumping into people in crowds as if you somehow can&rsquo;t tell they&rsquo;re there. You have to understand that even after years of intensive study, we can&rsquo;t be expected to fully understand you; sorry, allistics, but you&rsquo;re just too bizarre. 
Don&rsquo;t worry though. We will keep trying until the puzzle is complete. No, no, there&rsquo;s no need to say a word. You can&rsquo;t possibly understand you as well as we can. Trust us; we know what&rsquo;s best for you. 
(It&rsquo;s really not comfortable being on the receiving end of that, is it?)

[“Until all the pieces fit.”

Hey look, I’m working on it, but you allistics are hella difficult to figure out.]

Sorry, guys, I know it took me a pretty big chunk of my 20+ years to get it down, but you’re tough. You do all these weird things, like beat around the bush instead of saying what you mean, and bumping into people in crowds as if you somehow can’t tell they’re there. You have to understand that even after years of intensive study, we can’t be expected to fully understand you; sorry, allistics, but you’re just too bizarre. 

Don’t worry though. We will keep trying until the puzzle is complete. No, no, there’s no need to say a word. You can’t possibly understand you as well as we can. Trust us; we know what’s best for you. 

(It’s really not comfortable being on the receiving end of that, is it?)

Oct 1