Autistic Hedgehog

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Posts tagged with "allistic privilege"

Mar 7

PLEASE SIGNAL BOOST: Warning about Disabled Skepchicks Blog and Call for Help

Hedgehogs, I need your help. Or maybe it’s more accurate to say that we need our help.

A few days ago, my husband brought to my attention that the popular skeptic blog Skepchick was planning a sister site for disabled people. This was apparently due to a kerfuffle (and from what I can tell, not the first one) over ableist language being used on the site. Excited at the prospect, I applied. Only the find out that the very first conversation in the comments went like this, verbatim:

Nancy: 

Hi Sara – what about a parent of one (or more) disabled/autistic children. Can they apply?

Thanks!

Nancy

Sarah: Hi Nancy! That’s a good question– I’d say apply & we’ll figure it out from there. :)

I’m sure I don’t have to explain to any one of you why this bothered me. But I spoke up, pointing out that autistics absolutely do not care to have parents speaking for us and even linking to the blog for Autistics Speaking Day. 

That post sat in the moderation queue for three days. When it finally appeared, no one responded to it. Not even Sarah, who is supposed to be running this site. I wrote another post, pointing out further why this lack of response was so upsetting. Aside from being accused of things I have not done and still having my concerns completely ignored, still I have not been properly responded to by the person who is supposed to be running the damn blog. Nothing. Not a word. As if my feelings and the feelings of autistics just don’t matter. I have, as you might imagine, withdrawn my application, because who wants to work with someone who doesn’t care enough about your feelings to respond to you?

So this blog is two things. First, it’s a warning. If this blog ever goes live, I caution you all to stay away from it. They haven’t even begun yet and already they’re showing oodles of ignorance when it comes to people with developmental and cognitive abilities and an utter lack of caring for our concerns. It very likely will not be a remotely safe or welcoming place.

The other thing is a call for help. Despite doing things like linking to Autistics Speaking Day, I’m being accused of speaking for all autistics, as if there aren't actuallyhuge amounts of us who have very real issues with parents speaking for us. So I’m asking you, if you have the spoons, to please go there and tell them exactly how you feel about the idea:

http://skepchick.org/2014/02/disabled-write-for-us/

This warning and call for help is for every and any person with a cognitive or developmental disability, not just autistics. These people believe they have so much right to disagree with us that they can just ignore what we say.

Well, I’m tired of being ignored. I’m tired of being treated like I’m so little of a human being that my opinions don’t matter at all. Skepchick is a big enough site to do so much harm to our cause, and I refuse to sit here and let them do it.

I can’t tell you how much pain I’m in right now. I want to crawl in a hole and never stop crying. I want to sit on an island and watch the world burn. I can barely see for the tears. I’m scared, because I’m little and they’re big, and part of me knows I can’t win. But I can’t not fight, either. This blog has become too important to me. It’s helped me so much, and I know it’s helped other people. I can’t sit in silence while people who are not disabled like we are presume to make decisions for us. 

Because that’s happening every day and it’s hurting so many people. Even when I’m silent, even when I can’t cope, I watch. I see the things all of you talk about, the way you’re treated, how you fight and fight and people won’t listen and this…this was a chance for the truth to be heard, from our own mouths and our own fingers, and they don’t care. So I have to speak. I have to speak for all of us who have been abused, who have been killed. I have to speak because if I don’t, there’s no way to stop this cycle.

Help me tell them to stop the cycle. Please, I’m begging you, help me tell them that solidarity is not just for neurotypical people. That we are done letting other people speak for us. Please.

This is a rant, and I apologize. I'm a 29 year old, married autistic woman. I recently revealed at work that I'm 15 weeks pregnant, and instead of the congratulations that my other coworkers have recieved I was simply asked "Can autistics get pregnant?". I'm still confused - my autism effects my mind, not my uterus. Then they asked if I was "emotionally capable" of caring for a baby. They have all been reported to HR. I just don't understand why they thought it was okay to say those things.

Anonymous

I’m so, so sorry they did that to you. That was the product of ignorance, ableism and privilege, plain and simple, and it was wrong. They thought it was okay because ableism is deeply ingrained in society, and people are taught all the wrong things about autism—and sadly, they thought it was okay because in truth, allistics aren’t naturally more empathetic than us. They just assume they are and many of them never teach their kids true empathy.

But they’re also wrong. Why shouldn’t you be emotionally capable of caring for a baby? Don’t let them get you down. This is a big thing in your life, and you deserve to be happy about it.

And congratulations! 

Have you ever heard of the Wendrow case? What are your thoughts?

Anonymous

The Wendrow case. My thoughts on the Wendrow case…hoo boy. I didn’t know about the Wendrow case until I received this ask, and in the end, I had to have my husband read up on it for me, because I couldn’t get through a single article without crying. They were that nauseating. It’s hard to elucidate my feelings on this, when every article I found didn’t bother much with facts and chose instead to exonerate the father and lavish stomach-churning amounts of pity on him. 

Trigger Warning: Rape, abuse, ableism.

For those who don’t know, the Wendrow case involved a young non-verbal autistic girl who, via a method of communication known as Facilitated Communication, made claims that her father had raped her multiple times. To make a long short story, in the end, because she couldn’t perform like a trained monkey in court, her father was acquitted. 

Do I sound bitter? I can’t help it. The articles really were gross. Just the very fact that the police taking the girl’s word as true is regarded as them “not trying to find the truth” is enough to make me want to cry. My feelings on the matter are thus a bit tangled, and revolve mostly around the criticism (dare I even call it) of Facilitated Communication, which is so rife with allistic privilege, I want to slap someone.

Those who are tested—yes, tested—sometimes prove unable to communicate via FC under pressure, and people (all of them allistic) generally ask “How could it be that someone who can otherwise write speeches etc. etc. etc. with this form of communication suddenly can’t use it in a testing environment?” And because they’re allistic (and maybe because they don’t remember or know how uncomfortable testing environments are) they figure, hey, FC must not really work, and it must be the words of the Facilitator and not the autistic person themselves.

They think this because they’re allistic and thus they’ll never be stuffed in a box like a guinea pig and asked to prove that their method of communication is viable, knowing all the while that if they fail, their rights as a human beings will be stripped from them. 

So when using FC in court, all the girl was able to produce was gobbledegook, which led to the father being acquitted. Her Facilitator, according to my husband, was painted really atrociously in the articles, while the father was held up as the poor victim of a misandrist witchhunting country out for tasty tasty manblood. And maybe he is innocent, but when I think about this, I can’t help but doubt. Consider how many allistic women can’t handle the pressure of a rape case. Hell, I know that I, having already faced the pain and horror of being judged unfairly due to my struggles with communication, might not be able to handle what they asked of this girl. I, who can speak for myself, am not sure I would’ve fared any better in court. 

I can’t sit here and accept that FC doesn’t work and the father is innocent, because I know what it’s like to be autistic from the inside. And even if he is innocent, it doesn’t matter. It doesn’t matter because no matter how many times FC does work, it’s cases like this one that will be used as precedent instead. It’s cases like this one that will be used to strip autistics of their rights and force them to remain in unsafe environments.

In all the furor to condemn the case, no one in the press stopped and thought. They didn’t think “holy shit, this girl might have been sent back to a man who constantly rapes her.” That’s the thing. She might well have gone home to a place where she’s raped every day and can do nothing to defend herself. And even if she wasn’t, other autistics will be, helped along by this case. And I can tell you how that makes me feel: It fucking terrifies me. 

Oct 3
[“Until all the pieces fit.”
Hey look, I’m working on it, but you allistics are hella difficult to figure out.]
Sorry, guys, I know it took me a pretty big chunk of my 20+ years to get it down, but you’re tough. You do all these weird things, like beat around the bush instead of saying what you mean, and bumping into people in crowds as if you somehow can’t tell they’re there. You have to understand that even after years of intensive study, we can’t be expected to fully understand you; sorry, allistics, but you’re just too bizarre. 
Don’t worry though. We will keep trying until the puzzle is complete. No, no, there’s no need to say a word. You can’t possibly understand you as well as we can. Trust us; we know what’s best for you. 
(It’s really not comfortable being on the receiving end of that, is it?)

[“Until all the pieces fit.”

Hey look, I’m working on it, but you allistics are hella difficult to figure out.]

Sorry, guys, I know it took me a pretty big chunk of my 20+ years to get it down, but you’re tough. You do all these weird things, like beat around the bush instead of saying what you mean, and bumping into people in crowds as if you somehow can’t tell they’re there. You have to understand that even after years of intensive study, we can’t be expected to fully understand you; sorry, allistics, but you’re just too bizarre. 

Don’t worry though. We will keep trying until the puzzle is complete. No, no, there’s no need to say a word. You can’t possibly understand you as well as we can. Trust us; we know what’s best for you. 

(It’s really not comfortable being on the receiving end of that, is it?)

Oct 1

Sep 9
[Top text: Please google your 101 questions]
[Bottom text: Before you ask me]

[Top text: Please google your 101 questions]

[Bottom text: Before you ask me]

Apparently, I can't be autistic because my therapist thinks being able to describe how my depression feels and understanding emotions makes me "allistic". Being able to talk about emotions, explain them, describe them is a thing only allistics can do now. I'm just triggered by the whole thing and I feel as if all of my other symptoms don't matter anymore, they were actually ignored (like my sensory problems) because I could TALK about my emotions. The worst part is she's an autistic specialist.

Anonymous

Honestly, if at all possible, it’s time for you to find a new therapist. This is a woman who has no place calling herself an “autistic specialist;” she ought to be fired. 

She’s wrong. Full stop. She’s ignorant and she’s doing you actual harm, and really, if you’re seeing her for things like depression, then it will only get worse with her treating you like that. You’re not in any way in the wrong here. She, however, is incredibly shitty at her job. 

I'm so mad. As I was driving home this morning, I saw a van that had written all over it, in blue paint, Autism Speaks propaganda and stuff about autism awareness month, and getting "justice" for their 6-year-old son. The buzzwords they used made it obvious that these people drank the friggin' kool aid. I felt like I got a momentary glimpse at someone allowing their own son's future to be compromised in the name of self-martyrhood. I wish I could have helped the kid somehow.

…justice!?

What even…justice!? Justice from what? How? I just…I do not get allistic people sometimes, I really don’t. 

I don’t blame you for being mad. And I understand wanting to help their kid. Though frankly, I admire your self-restraint. I’m not sure I’d have been able to resist the urge to get out of my car and take my keys to the sides of the Eugenicsmobile. Maybe find something sufficiently sharp to take out the tires. 

Apr 3

when I was at uni I had more than one time where I had somehow made allistic guys think I was interested in being friends or more, and not only was I confused about how I did that, I couldn't figure out how to get them to go away, I was scared of being rude, but they would make me really uncomfortable and try to walk me to classes or to my dorm and I would skip classes to avoid them. I think I should have told them clearly that they were bothering me and why but I was scared and confused by them

Anonymous

Oh man, that blows. :(

This is what I mean when I say that autism doesn’t cause that kind of behavior. Allistics behave that way too, so it’s clearly due to other issues. Refusing to respect people’s boundaries is never okay.