Autistic Hedgehog

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Mar 8

PLEASE SIGNAL BOOST: Warning about Disabled Skepchicks Blog and Call for Help

ischemgeek:

sherlocksflataffect:

autistichedgehog:

merinnan:

autistichedgehog:

Hedgehogs, I need your help. Or maybe it’s more accurate to say that we need our help.

A few days ago, my husband brought to my attention that the popular skeptic blog Skepchick was planning a sister site…

On the upside, Will finally came out with some cognitively-accessible language answers: No, parent bloggers will not be a thing. I had to resist the urge to write “Was that so fucking hard?!” I did write “this is how you do cognitively-accessible language for me”

I’m not keen on how Will is lumping autistichedgehog and her husband together as a single entity in posts, though, and I might’ve monologed a bit on why the posts were not cognitively accessible to me. Posting while atopy flare and sick and headachy = monolog filter not operational. Whatever, I think they needed a rundown of why, no, our concerns had not been answered until someone came out with an explicit answer.

Also: snarling at autistic people for having trouble with subtext and implication? Not on. Don’t tell me to “re-read” ad infinitum, clarify.

Also, yes, I am PO’d. So PO’d I made a tumblr while migraine auraing and asthma flaring and assorted other histamine fun times-ing. When adrenaline leaves, I will crash hard and probably need a pillow fort day. My posts in the thread are very academic b/c that’s kind of my defense mechanism when I feel threatened/anxious/angry. More nervous/threatened/angry I feel in an unsafe space, more distant/obtuse my language gets. Frankly, I’m surprised I didn’t start breaking out the hexa- and heptasyllabic words in my vocabulary.

Ye-ah, way, way too little, and way too fucking late.

Chemgeek, this was not you having a cognitive problem. You didn’t read anything wrong at all. The specific question that was asked was literally if parents of disabled/autistic children could apply. And the answer given was literally that they could and would be taken under consideration. 

Sarah tried to make up some bull about “what if a sixteen-year-old who can’t write well wants to apply”, but that was bull. She was not talking about any form of assisted communication, even if that’s what she’s trying to claim now. At no point did she or any other Skepchick staff member say “Parents can help their children apply but cannot apply themselves.” Again, the question the answered was not “Can parents of disabled/autistic children help their children apply?” it was “Can parents of disabled/autistic children apply?”

They said yes to that. And when people protested and explained why they had a problem with this, they made no attempt to engage. There was not anything to remotely demonstrate that it was a misunderstanding that needed to be cleared up. In fact, it was largely ignored, until they decided to attack me. 

Then suddenly I was being told I was “repeatedly demanding an answer” when in fact at that point I had posted what, once? With a polite suggestion to look at the Autistics Speaking Day blog to see why their stance on this matter was problematic. Rebecca Watson herself showed up to call me awful and ignorant and reactionary and a few other things, too, before straight up censoring me and my husband.

In a sense, Will’s clarification now is just more of the same gaslighting that was already occurring. He’s trying to make it look like that’s what they were saying all along, but it most emphatically was not, because they never once said it. And in point of fact, he and more than one person claimed they weren’t responding because of some bullshit about “not wanting to disagree with marginalized people because it might marginalize them further.” But if they didn’t think it was okay to allow parents to blog on behalf of their children, why the word disagree? I said “Parents should not be allowed to apply.” They said “We’re not responding because blah blah blah disagreeing with marginalized people." 

They said they disagree with me about parents not being allowed to apply. Never did they say parents wouldn’t be allowed to blog on their children’s behalf. And any child applying with their parent’s assistance would be applying for themselves. Thus the parent would not be applying. So if Sarah had said "Parents can help their children apply but not apply for themselves” that would be one thing. But that’s not what she said, that’s not what any of them said, and no matter how they try to claim it, that’s not what their subtext and implications said, either.

I write for a living. I am damn good at subtext and implications, especially when it comes to allistic people, because it’s the only way to protect myself from them. Chemgeek, do not let them convince you that you were the one who misunderstood, because you understood just fine. Right now they’re trying to cover their asses. Just like they’re claiming it was all a “little kerfuffle” over the word st*pid when the evidence shows it wasn’t, they’re trying to minimize what happened here. They’re trying to make it look like they weren’t horribly abusive and viciously ableist to disabled people.

But they were.They are 100% in the wrong here and you misunderstood nothing. It’s all there in black and white, and they’ve damned themselves with what they’ve said as much as with that they didn’t. They think that now they’ve bothered to answer, after all the abuse they heaped on me, that they did the right thing and get to have ally cookies now. But they sure as fuck aren’t getting them from me.

Mar 7

PLEASE SIGNAL BOOST: Warning about Disabled Skepchicks Blog and Call for Help

sherlocksflataffect:

autistichedgehog:

merinnan:

autistichedgehog:

Hedgehogs, I need your help. Or maybe it’s more accurate to say that we need our help.

A few days ago, my husband brought to my attention that the popular skeptic blog Skepchick was planning a sister site for disabled people. This was apparently due to a kerfuffle (and from what I can tell, not the first one) over ableist language being used on the site. Excited at the prospect, I applied. Only the find out that the very first conversation in the comments went like this, verbatim:

Nancy: 

Hi Sara – what about a parent of one (or more) disabled/autistic children. Can they apply?

Thanks!

Nancy

Sarah: Hi Nancy! That’s a good question– I’d say apply & we’ll figure it out from there. :)

I’m sure I don’t have to explain to any one of you why this bothered me. But I spoke up, pointing out that autistics absolutely do not care to have parents speaking for us and even linking to the blog for Autistics Speaking Day. 

That post sat in the moderation queue for three days. When it finally appeared, no one responded to it. Not even Sarah, who is supposed to be running this site. I wrote another post, pointing out further why this lack of response was so upsetting. Aside from being accused of things I have not done and still having my concerns completely ignored, still I have not been properly responded to by the person who is supposed to be running the damn blog. Nothing. Not a word. As if my feelings and the feelings of autistics just don’t matter. I have, as you might imagine, withdrawn my application, because who wants to work with someone who doesn’t care enough about your feelings to respond to you?

So this blog is two things. First, it’s a warning. If this blog ever goes live, I caution you all to stay away from it. They haven’t even begun yet and already they’re showing oodles of ignorance when it comes to people with developmental and cognitive abilities and an utter lack of caring for our concerns. It very likely will not be a remotely safe or welcoming place.

The other thing is a call for help. Despite doing things like linking to Autistics Speaking Day, I’m being accused of speaking for all autistics, as if there aren’t actuallyhuge amounts of us who have very real issues with parents speaking for us. So I’m asking you, if you have the spoons, to please go there and tell them exactly how you feel about the idea:

http://skepchick.org/2014/02/disabled-write-for-us/

This warning and call for help is for every and any person with a cognitive or developmental disability, not just autistics. These people believe they have so much right to disagree with us that they can just ignore what we say.

Well, I’m tired of being ignored. I’m tired of being treated like I’m so little of a human being that my opinions don’t matter at all. Skepchick is a big enough site to do so much harm to our cause, and I refuse to sit here and let them do it.

I can’t tell you how much pain I’m in right now. I want to crawl in a hole and never stop crying. I want to sit on an island and watch the world burn. I can barely see for the tears. I’m scared, because I’m little and they’re big, and part of me knows I can’t win. But I can’t not fight, either. This blog has become too important to me. It’s helped me so much, and I know it’s helped other people. I can’t sit in silence while people who are not disabled like we are presume to make decisions for us. 

Because that’s happening every day and it’s hurting so many people. Even when I’m silent, even when I can’t cope, I watch. I see the things all of you talk about, the way you’re treated, how you fight and fight and people won’t listen and this…this was a chance for the truth to be heard, from our own mouths and our own fingers, and they don’t care. So I have to speak. I have to speak for all of us who have been abused, who have been killed. I have to speak because if I don’t, there’s no way to stop this cycle.

Help me tell them to stop the cycle. Please, I’m begging you, help me tell them that solidarity is not just for neurotypical people. That we are done letting other people speak for us. Please.

Despite being a long-term intermittant lurker on Skepchick, I never made an account to comment because, honestly, commenting on blogs I’m not 100% comfortable on freaks me out. And Skepchick, sadly, is one that I’m not 100% comfortable on exactly because of their history of massive fails on disability issues, particularly DD issues.

It looks like Skepchick is now being added to my ‘unsafe blogs to visit’ list. After reading through the comments thread, I’m honestly sick to my stomach at the blatant neuro-ableism, gaslighting, disrespect, unchecked privilege, willful ignorance, and dismissivenes displayed by Skepchick bloggers and commenters (particularly Sarah and Will) towards autistic people. 

To those of you with the spoons to keep trying to get through to these people, I wish you all the best and will be silently cheering you on. Sadly, given what I’ve seen displayed in that comments thread and Skepchick’s previous history, I can’t say that I’m confident about your chances (but I’m still your silent cheer squad!)

And in closing: neurotypical privilege is being allowed and encouraged to speak over neuroatypical people despite a policy of ‘outsiders’ not being allowed to speak for minorities that they’re not part of.

No kidding. I don’t blame you for not wanting to get involved. The Almighty herself has shown up to tell me how “awful” and “ignorant” I am, for “assuming” they would treat developmentally disabled people poorly. Except that’s exactly what they were and are doing, so there you have it. 

Like people are straight up telling me they have a history of this behavior and I’ve seen nothing to indicate that isn’t true, and have been in fact treated horribly, and then I get treated even more horribly.

Rebecca Watson, ladies and gentlemen. The fucking anti-developmental disabilities Richard Dawkins. The universe loves her irony a bit too much, methinks. 

Oh hey so I was the person who initially called out their ableism. Which was really really bad, as was their able tears all over the place reaction. It wasn’t a “kerfuffle”. It was SKEPCHICK DONE FUCKED UP.

I wrote a thing about it, but it’s fairly vague bc I am still so triggered.

http://timetolisten.blogspot.com/2014/02/skepticisms-ableism-problem-again.html

But yeah, they’re looking for their Token Disabled Friend. And they’re being just horrendous and any self respecting disabled person would not want anything to do with it, it’d be being a token.

I just…my jaw is on the floor right now. Are you seriously telling me that it was an autistic person who called them out in the first place and that their “solution” to the problem…involved ignoring and gaslighting another autistic person? For reals? I mean, clearly it did, but holy shit, the cognitive dissonance is staggering right now.

I am so sorry you went through that. So, so sorry. I know from my own experience just how vicious and abusive they are, and it is awful, and I’m not surprised you’re still triggered. I’ve cried to the point of dehydration today.

People, you should read sherlocksflatafflect’s post there, definitely. Because holy shit, holy shit.

Meanwhile, Rebecca Watson is being a bully who refuses to allow any comments that don’t agree with her. 

Rebloggable by request

You type on here with such perfect grammar a large vocabulary and very well educated. By reading your posts you don’t sound like you have autism. I recently worked with kids in year 6 who had autism and not one of them in the class could read or write beyond the level of a preschooler/kindergarten. I guess what I’m asking is how this all works?
 Anonymous

*deep breath*

I’m going to try to answer this without exploding. Try. Because if you’ve actually been reading my posts and, you know, absorbing them, I shouldn’t need to answer this at all.

I think I’ve said on here about a thousand times that autistics are all different and that functioning labels are meaningless. But let’s examine why I might be so different from the small handful of autistic children you know. Since clearly “I am not them” is not a satisfactory answer for you, let’s try some sordid details instead.

(For my Hedgehogs: Trigger warning for ableism, bullying, abuse, suicide and rape.)

Oh, I suppose not all of it is sordid, as such. I wasn’t diagnosed until I was nine. Although I’ve had an ADHD diagnosis practically since I was in the womb, and my mom always felt the doctors missed something about me, no one acted like I was a useless shell of a person who would never amount to anything (that came later). It wasn’t assumed or expected that I couldn’t learn to read, couldn’t learn to write, couldn’t be a well educated individual. Hell, my mom started teaching me to read when I was about three (though admittedly this could be so she wouldn’t have to suffer through Kittens Are Like That again). When I developed my first special interest and started reading books on horses all the time, no one tried to stop me or scold me, because reading was good.

Perhaps these kids you’ve worked with never had those benefits. Perhaps people always treated them like they would never be worthwhile people, like they couldn’t learn to read or write anyway so why bother teaching them? Or perhaps it’s just not their strength. You see, it is mine.

I’m a writer and I’ve been writing for fifteen years, but I’ve always had a particular knack with words. When I was tested in sixth grade, I was found to be four years ahead of my reading level (which was probably not even fully accurate since I was already reading novels for adults at that age). For my entire life I’ve known words—known the meanings to words—that I’d never even heard before. “The world is made up of the greatest composition of numbers and letters.” I said it when I was…four? Five? I couldn’t have been more than six when I once described myself as “feeling like a pile of used up rags.” 

You see? When people talk about autistics with special talents, they think of doing large sums in their head like Rain Man or being able to play a song on the piano after hearing it only once. But my gift, my talent, is words, communication. I don’t communicate well in spite of my autism, but because of it. 

But I mentioned sordid details, didn’t I? And really, the good is nice, but I’m not me without the bad.

It’s funny you should call me “very well educated” because I’m not; not in the typical sense. My world started going to hell after my father committed suicide. By the time I was twelve, I was being viciously bullied in school. I was cornered and hit in the locker room, I was surrounded and harassed at my desk, I got rocks thrown at me on the way home from the bus stop. I didn’t know it for some time, but the other students ganged up to tell lies about me, accusing me of being the bully, telling teachers I called them names and swore at them (I never even swore when I stubbed my toe, back then). I can remember sitting and listening to the lies, opening my mouth to defend myself and being shushed, viciously, by my so-called guidance counselor. 

No one believed me. Even I didn’t believe me. I have one of the sharpest, longest memories you’ll ever encounter, and I spent years thinking I was going out of my mind, because I couldn’t remember any of these things I supposedly did. And I hate talking about it, because people don’t like to believe that children can be that horrible. But they can and they were, and I was surrounded by adults who saw my difficulties expressing “proper” allistic emotions as proof I was lying. Adults I couldn’t look in the face because I could never trust them.

I was home-schooled part of the year in both 6th and 7th grade, and for all of 8th grade. Despite that, I tried going back to school for high school. My education was never steady or stable again. I couldn’t stay full days—by the end of the day I couldn’t breathe from the panic—and I missed a lot of classes. Much of my “very well educated” comes from educating myself. And while all this was happening, when I was only fifteen, I was lying still while my boyfriend raped me, because I’d been so lonely for so long that I was terrified of losing him and the friends he’d brought into my life. I spent years feeling like a stupid little girl who should have known better than to let him do that.

But like I said, I educated myself. And not just in terms of writing or reading or anything else. I educated myself in you. In allistics. I learned to read you better than you can read each other—but even so, I rarely trust my own judgment. I ought to, but my instincts have been so battered by the years of abuse that I can’t. Give me time and I can learn people, learn how they’ll react in a given situation better than they know themselves. And I know me. I spent hours upon hours in introspection, being far more brutally honest with myself than most people will ever be. I know how I act, why I react, why things hurt me…and I’ve put it all together to decode the world. To survive the world.

Do you know how exhausting it is to never be able to let your guard down, ever? To always have to study people, to actively read their non-verbal language, to vet every single thought that comes through your head to make sure it’s not offensive, and to have to do it all at the speed of thought? To smile and look people in the eyes—or fake it—even when you don’t want to? Because that’s my life. I communicate well now verbally too, but I didn’t always. It was only when I was writing that things always fell into place, that I got it right, that I was on the same wavelength as other people. Only when I’m writing that it’s not another long, drawn-out battle to appear just like everyone else. 

That is how it works. How it works it that we’re all different people, but we are people. We’re not empty husks who live our lives unaffected and unchanged by the world around us. Oh, it affects us, all right. It changes us. For many of us, it stuffs us into a box and then praises us while we huddle there, cramped and in pain but doing what society thinks is “right” and “acceptable.” Others are dubbed such worthless lost causes that there’s little point in trying to shove them into the box, because they’ll never go in anyway. Very few people ever care to see what happens if they try to adapt to us instead. 

Apr 9

You type on here with such perfect grammar a large vocabulary and very well educated. By reading your posts you don't sound like you have autism. I recently worked with kids in year 6 who had autism and not one of them in the class could read or write beyond the level of a preschooler/kindergarten. I guess what I'm asking is how this all works?

Anonymous

*deep breath*

I’m going to try to answer this without exploding. Try. Because if you’ve actually been reading my posts and, you know, absorbing them, I shouldn’t need to answer this at all.

I think I’ve said on here about a thousand times that autistics are all different and that functioning labels are meaningless. But let’s examine why I might be so different from the small handful of autistic children you know. Since clearly “I am not them” is not a satisfactory answer for you, let’s try some sordid details instead.

(For my Hedgehogs: Trigger warning for ableism, bullying, abuse, suicide and rape.)

Oh, I suppose not all of it is sordid, as such. I wasn’t diagnosed until I was nine. Although I’ve had an ADHD diagnosis practically since I was in the womb, and my mom always felt the doctors missed something about me, no one acted like I was a useless shell of a person who would never amount to anything (that came later). It wasn’t assumed or expected that I couldn’t learn to read, couldn’t learn to write, couldn’t be a well educated individual. Hell, my mom started teaching me to read when I was about three (though admittedly this could be so she wouldn’t have to suffer through Kittens Are Like That again). When I developed my first special interest and started reading books on horses all the time, no one tried to stop me or scold me, because reading was good.

Perhaps these kids you’ve worked with never had those benefits. Perhaps people always treated them like they would never be worthwhile people, like they couldn’t learn to read or write anyway so why bother teaching them? Or perhaps it’s just not their strength. You see, it is mine.

I’m a writer and I’ve been writing for fifteen years, but I’ve always had a particular knack with words. When I was tested in sixth grade, I was found to be four years ahead of my reading level (which was probably not even fully accurate since I was already reading novels for adults at that age). For my entire life I’ve known words—known the meanings to words—that I’d never even heard before. “The world is made up of the greatest composition of numbers and letters.” I said it when I was…four? Five? I couldn’t have been more than six when I once described myself as “feeling like a pile of used up rags.” 

You see? When people talk about autistics with special talents, they think of doing large sums in their head like Rain Man or being able to play a song on the piano after hearing it only once. But my gift, my talent, is words, communication. I don’t communicate well in spite of my autism, but because of it. 

But I mentioned sordid details, didn’t I? And really, the good is nice, but I’m not me without the bad.

It’s funny you should call me “very well educated” because I’m not; not in the typical sense. My world started going to hell after my father committed suicide. By the time I was twelve, I was being viciously bullied in school. I was cornered and hit in the locker room, I was surrounded and harassed at my desk, I got rocks thrown at me on the way home from the bus stop. I didn’t know it for some time, but the other students ganged up to tell lies about me, accusing me of being the bully, telling teachers I called them names and swore at them (I never even swore when I stubbed my toe, back then). I can remember sitting and listening to the lies, opening my mouth to defend myself and being shushed, viciously, by my so-called guidance counselor. 

No one believed me. Even I didn’t believe me. I have one of the sharpest, longest memories you’ll ever encounter, and I spent years thinking I was going out of my mind, because I couldn’t remember any of these things I supposedly did. And I hate talking about it, because people don’t like to believe that children can be that horrible. But they can and they were, and I was surrounded by adults who saw my difficulties expressing “proper” allistic emotions as proof I was lying. Adults I couldn’t look in the face because I could never trust them.

I was home-schooled part of the year in both 6th and 7th grade, and for all of 8th grade. Despite that, I tried going back to school for high school. My education was never steady or stable again. I couldn’t stay full days—by the end of the day I couldn’t breathe from the panic—and I missed a lot of classes. Much of my “very well educated” comes from educating myself. And while all this was happening, when I was only fifteen, I was lying still while my boyfriend raped me, because I’d been so lonely for so long that I was terrified of losing him and the friends he’d brought into my life. I spent years feeling like a stupid little girl who should have known better than to let him do that.

But like I said, I educated myself. And not just in terms of writing or reading or anything else. I educated myself in you. In allistics. I learned to read you better than you can read each other—but even so, I rarely trust my own judgment. I ought to, but my instincts have been so battered by the years of abuse that I can’t. Give me time and I can learn people, learn how they’ll react in a given situation better than they know themselves. And I know me. I spent hours upon hours in introspection, being far more brutally honest with myself than most people will ever be. I know how I act, why I react, why things hurt me…and I’ve put it all together to decode the world. To survive the world.

Do you know how exhausting it is to never be able to let your guard down, ever? To always have to study people, to actively read their non-verbal language, to vet every single thought that comes through your head to make sure it’s not offensive, and to have to do it all at the speed of thought? To smile and look people in the eyes—or fake it—even when you don’t want to? Because that’s my life. I communicate well now verbally too, but I didn’t always. It was only when I was writing that things always fell into place, that I got it right, that I was on the same wavelength as other people. Only when I’m writing that it’s not another long, drawn-out battle to appear just like everyone else. 

That is how it works. How it works it that we’re all different people, but we are people. We’re not empty husks who live our lives unaffected and unchanged by the world around us. Oh, it affects us, all right. It changes us. For many of us, it stuffs us into a box and then praises us while we huddle there, cramped and in pain but doing what society thinks is “right” and “acceptable.” Others are dubbed such worthless lost causes that there’s little point in trying to shove them into the box, because they’ll never go in anyway. Very few people ever care to see what happens if they try to adapt to us instead. 

I Want to Make Something Abundantly Clear

To any anons who want to waltz in here and try to tell me how to behave, how to think, how to feel, how to act when people oppress me with their words, their behavior, their very ideas:

You are not starting a conversation, you’re attempting to bully and gaslight me. And I will not stand forit.

If you think for a second that I will bow and fold because you call me “mean” for standing up for myself, you’ve got another think coming. If you think you can guilt me into walking on egg shells and being nice to my abusers by telling me to take the highroad, you are enormously misguided. 

And if you think–if you imagine for the smallest second–that I will let you bully, gaslight and guilt trip my followers, you’re going to find out just how prickly this particular hedgehog can be; That which does not kill me makes me meaner, and trust me, over the years, a lot of things have tried. 

I’ve dealt with plenty of bullies. I went through bully hell and came out the other side, and you don’t scare me. I know that intimidates you. The idea of marginalized people standing up for themselves terrifies you. And if you’re going to hang around my blog to sling around anon hate, I suggest you get used to terror. I will never, ever stop defending myself against you. Ever.

I know that physical violence is wrong, but I’ve found that it’s the only way to get people to respect my boundaries. I feel terrible for enforcing personal space rules with threats of hitting people, but I don’t know what else to do. I need people to not touch me, and when I tell them “don’t touch me”, it just makes them do it more.
 Anonymous

 

I’m going to say something here that might be a bit controversial, but I think it needs to be said.

It’s true that in most situations, avoiding violence is best. But we should never forget that the idea that violence is wrong is often used as a tool of oppressors to keep people oppressed. Think about it: People are perpetrating violence (and yes, it is violence) against you, yet you’re the one feeling guilty. Because so many of us live in a society so twisted that many types of violence against people are accepted and normalized, but standing up for oneself is demonized. Especially when you’re someone that someone else wants to keep oppressed. 

You shouldn’t let people convince you that standing up for yourself is wrong. You shouldn’t let people convince you to tolerate touching you don’t want. It may be that threats of violence will be the only thing you can do with some people (violence was the only thing that worked against bullies in school) but let’s see if we can’t find something you are more comfortable with that will work on most people.

First of all, if you’re dealing in people you know won’t seriously harm you, you could try a threat of much lesser violence: pinching. You may have to follow through on it with some people, but most people really don’t like being pinched and if you feel like it’ll make someone back off (and make you feel less guilty) give it a try.

Something my husband suggested was carrying a small water gun with you and squirting people with it when they touch you against your will (it does often work on cats, after all). Again, since this is probably going to annoy people, be careful who you use it on and you should probably give anyone you do use it on a warning first. 

You can also try saying “Ow” really loudly or screaming like you’re in pain, or something similar. Something that will make other people feel uncomfortable and guilty—which they should

Whatever you try, always keep your own safety in mind. And though it can be hard, avoid those kind of people whenever you can. People who have so little respect for your feelings that they touch you against your will are not good people. Even when it’s family, such behavior is toxic. You’re not the one at fault here; they are.

(If anyone has any further suggestions or knows some nonviolent techniques that work in these situations, please send them to my inbox.)

Rebloggable by request